So much

Heya!
Sorry I didn't do a post at the weekend but I literally had no time.
I have so much to talk about in this post so I really hope it's not boring.

Over the weekend I remembered that one of my cousins was doing a 10k charity run sometime this year and I wanted to donate to it.
I went onto her facebook to find out how and I saw she had singed up with virgin money giving...but the thing that made me feel so emotional and cry so much was the fact she is raising money for cystic fibrosis.
I know that lots of my family donate to the cf trust but the fact she is training to do a run and donate for cf just made me feel so proud and just show me that I have an amazing family.

Will post the link on my next post so y'all can donate and support my beautiful cousin.

On Saturday me and one of me stunning best friends went to buy our prom dresses. I now own a pretty dress wooooo. We both got dressed up to show her family and it made me all teary because she looked fab and it was just emosh.

My dress...

My shoes (they don't fit well)...

So finally today I had my scripted drama controlled assessment. As I've been in hospital for lots of this year I didn't have a group to go into so my teacher decided I could do it with her reading in.

Thankfully my school also said that it didn't matter how badly it went and that they don't care what grade I get so that's ok.

It was really funny though as me and my teacher both fucked it up and I also forgot what the name of my character was and had a little panic ;)

So that's it for today guys and remember to look out for my cousins donating page in my next blog so you can donate and help find a cure for cf!

Peace love Iz x

A little break

Hey!
Haha so I know I've only just started this thing but as my exams are coming up and revision is starting to stress me out I've decided that I'm only going to write a post once or twice a week until they are done (sorry)!

So today I handed in my prom form and can't wait to get my dress and actually own something pretty instead of jeans and hoddies.

Thanks to my amazing cousin I now have new fab music to listen to on my iPod which include...
One direction
More 5sos
AM
All time low

Drama at school is slightly stressing me as I have to learn all my lines for Monday and I only know half of them so far...shite.


Mmmm what else has happened...
The dentists canceled on me which is great as I didn't want them to pull my baby tooth out.
My doctors haven't confirmed at date for clinic which made me annoyed but I think it's on my last day of school so I will probably miss leavers assembly.

Yah so that's it for today, will do a better post on Saturday or Sunday. As soon as exams are done I will do this thing every other day again. I promise ;)))

Be swaggy ;) or sweggy!

Peace love Iz x

Day in the life of a CFer

Thought I would let you all know what a normal day is like living with cf and talking meds...

If I have school I will normally wake up at 6 and do my acapella for 20 minutes and then do my neb for 10, I normally have a nap after this for a while as it's so tiring!
Once I'm changed and looking fabulous ;) I will take my many pills.
With breakfast I have to take my enzymes which in my case is creon 10000 and I take 2 of these pills with breakfast.
My other morning tablets at the moment include...
Steroids 10mg
Itraconozol x2
Vitamin k
Calcium
Vitamin a and d x3
Pro cal shot 30ml
Fluclox

Then I only need creon during the day if and when I eat to digest my food.

When I come home from school I have my ensure plus and have my DNase neb.

I then have to wait an hour before I can do my acapella and other neb again (in the evenings I spend longer on the acapella).

Then more fricking creon with dinner.

Finally before bed another pro cal shot, fluclox and 2 more tablets of itraconozol.

That's it peops!! Oh and sometimes the gym as part of physio (adding that to please everyone)!

Life
Had a fabby day with my friends today who painted my nails and helped put a smile on my face!

Having to start waking up at 6 again is going to sucks.

Orphan black has started again which makes me happy as it's my favourite show so hopefully it will get my through revision!

Hopefully it was interesting to get an insight into my life...lool!

Peace love Iz x

Easter

HAPPY EASTER EVERYONE!!!

So its easter today and also the end of the holidays!
Ive had an amazing two weeks down at my grandmas, seeing family, going out and just being in the most beautiful place in the world.
Ive been to see phantom of the opera in London which was bloody frickin fab, i went to see captain america, been on lots of walks and went to Brighton to try and get a 5SOS cassette tape for world record day but turns out 300 people had camped outside so we had no chance :(

Currently listening to frozen as I write this...LET IT GOOOOOO!


As easter ends Ive realised that I have only have 11 days of school before exams and this terrifies the shit out of me.
For gcses Im taking:
Biology, Chemistry, Physics, Maths, English, Drama, RS and Geography!
The sooner i can give up science and maths the better because even though I have CF I do not understand biology and genetics ;)

In the next few weeks Ive got clinic so I will do a post on how that goes. Im a bit nervous about it as I dont think Ive gained any weight and dont want to find out my lung function has got worse.(hopefully its at least 75%). buuuuttttt my steroids have been reduced to 10mg so thats great!!!!!!!!!


my cuz made up a quote so here goes...
"God made us with CF not be able to meet eachother because we are so great that if we met up with eachother we would be able to take over the world!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!"
Thanks dude ;))


Just to confirm i actually don't believe in God however i have no negative thought towards people that do.

I hope you all have a swaggytastic easter!!
(I keep using the words good, great, amazing and fab so my cuz told me to use swaggytastic, dw im not a twat).

Peace love Iz x

Hospital essentials

Hi again!

So I didn't want to do a CF related post today as all the ideas I had where too deep and emotional and I didn't feel like writing about them today so although this post is about hospital it's not going to be CF related!!


Being stuck in hospital for two weeks suxxxxx so here's some thing I would reccomend to take...

Laptop - so that you can play DVD's and also use the internet if you can
Your own blanket - as the hospital ones can get gross and they look so fricking boring
Shower stuff and towels because you cannot go two weeks without washing!!!
YOUR OWN FOOOOD - because the hospital food is like eating cheesy sick (mmmm so lavely)
I would take pringlez and strawberry Bon bons!!!
Plenty of DVD's and box sets as watching twilight and peppa pig gets quite old after the 1000th time!
MUSIC - this babey gets me through my toughest times!
Teddys- who says just because your a 'big kid' you can't cuddle Teddy's??
Pictures of hunky men so you can decorate you room (the nurses will also appreciate this and in my case put some up for you).
Mags so you can keep up to date with all the Kardashian and towie gossip!
Hair dryer as the hospital one is usually broken!
Hair straighteners- because if you have super horrible curly wavy crazy hair like me then you need to fix it before human eyes can see it!

What I wouldn't do is use 3G on your phone as only a complete nob would go over their limit and get a HUMONGOUS phone bill...which I totally didn't do...

ANDDDD...
I thinks that's all I can think of :D

Life

I went to london yesterday which was very exiting as I went to see the Phantom of the Opera and oh my god it blew me away.
I knew nothing about the show before I went to see it and I could not have loved the plot and songs more.

It made me really sad that I quit my drama group after 5 years. Each year we would perform a musical and although I was always in the chorus it was still so much fun being on stage. But because of silly CF and hospital stuff I had to quit but oh well.

So that's it for today peops........it was more of a light hearted post than normal but I hope it was ok!

Peace love Iz x

How to tell people you have CF

Okay so when I was little I found it very hard when people asked me questions about why I was taking pills or why I was always ill and to start with I didn't want them to know I had CF.

I figured there may be lots of you who don't know how to respond when asked these questions so I thought I could help with some responses.

Situation 1... Talking pills (enzymes) and someone questions why you are taking them
So if you don't want them to know anything about your illness then you could simply tell them you have to take pills when you eat and leave it at that...

If they carry on to ask why and other things you can either just tell them you don't want to talk about it or if they are a friend who you feel close enough to tell you can explain that they help digest your food and maybe even explain you have CF.


Situation 2... Someone questions why you are always ill
So if they are not a friend and you don't want to tell them you can just say you have had a bad cold or something or just say it's private.

If it's a friend who doesn't know about your CF yet you can consider telling them about the illness or just tell them you have health problems but don't like discussing it.



This leads on to how to describe CF briefly to a new friend...
I mainly just tell them the name and say that it effects the lungs and effects my pancreas too.

I wouldn't tell then everything such as hospital and all your medication straight away if they don't ask as they may not be as understanding as you thought.

So yeah that's about it on how to tell people...I'm sorry if it's all way too obvious I just thought it may help some people!!



Found some funny CF memes ;) hahahahaha so relatable ;)

Okay so that's all for today! Literally running out of ideas so need so help! I've added a bucket list to my blog so go check it out :D

Peace love Iz x

Determination and randomness

I've been sitting on the sofa for about 30 minutes trying to think of what I could write that would be in some ways interesting and it's so freaking hard ;)

But I've decided that since I made a bucket list I need to become more determined to do things and to keep my lungs healthy.
I'm going to try and complete lots of thing on my bucket list this summer and in order to be able to do them I'm going to need to be fit and healthy so I've decided to take medicine and physio more seriously.
I WILL take all my meds do all my physio and go to the gym at LEAST twice a week and if I don't I'm going to get people to add horrible things (sort of like dares) to my bucket list.

Thoughts and favs-
I'm not having all that many thoughts at the moment and I'm in a completely random and hyper mood but I will feel guilty if I don't do this every other day so sorry about today's shitty blog.

I went to see Captain America with my cuz and it was so brill, although I'm not gonna lie movie posters terrify me so I was not all too happy with the hugely huge HUGEEeE 3D posters that filled the cinema.

Today I started revision again after a weekend long break and now I'm feeling chilled and happy again so I want to enjoy the sun and the fact I'm in the most beautiful place in the world right now!!

Oh Kay so that about it for tonight stay fabulous like Ryan and Sharpay!!

Peace love Iz x

Happiness

Over the past few days some things have happened to put a HUGE smile on my face so I thought I would share them with everyone :D

Firstly I will start with CF...over the past week I've started talking to more people who also have CF and I've got to say it's the best thing I've ever done! Speaking with other people with CF is so comforting and everyone is so friendly and helpful...and obviously we don't just talk about CF and it's so nice to find that lots of others are into the same stuff as me!! So while speaking to some people (two people mainly) I've been in such a happy mood!!!!!!


It's also the holidays and so I'm staying down at my grandmas like always and it's just such a peaceful beautiful place where I feel like I can escape everything! I also have the best family who I see everyday and always have the best laughs with!

Today me and my cousin did a kids Easter egg hunt in the local village and had such lols!
We also created a cringe twitter account to spam and cringe youtubers which constantly makes me laugh!!!


Having deep convos about the future lately and I've decided that I want to go to uni to study geography but after that I do not want an intense long term job as I don't want to waste my life when I'm likely to become iller as I get older so I've decided to go with the flow...I've been considering primary school teacher or assistant but I'm not too sure yet.

I also don't want my CF to hold me back and stop me doing things so I'm going to add a bucket list to my blog to encourage myself to do more.

I was watching sherk the third earlier (haha like a lil kid) and I really liked something they said...
If there is something you really want, or there's someone you really want to be, then the only person standing in your way...is you.

Just something to think about really!!



Favourite songs
Thought I would share some songs that I'm LOVING so much at the moment...
Daniel of the den - Bastille
Demons - Imagine Dragons
The irony of choking on a life saver - ATL

Tune of the week... Devil woman by Cliff Richard! ( ahahhahahhaha major jokes )

Peace love Iz x

Hospital stays

Hey! So I promised I would do this every other day so as nothing majorly exiting has happened in the past two days I thought I would just talk about CF hospital stays and my favourite things over the past few days so here goes...



Usually with CF when we have a really bad infection that cant be shifted with normal oral antibiotics we get given a two weeks or more course of IV antibiotics either given to us through a PICC line which is in our arm or a port (if you have one).

There are usually two IV antibiotics we have and we are connected to the drip machine while the medicine enters our line.

The meds are given three times a day at 6am, 2pm and 10pm.

While we are not on the drip the fun doesn't stop...most of us have a morning pills to take which can take a while to get through and then once we are done the physios come...FUN...


With the physios we go to the gym in the morning and they watch us run and do other gym stuff and then in the afternoon they go through our individual physio routines with us.

For me that involves the acapella and pep.

Then the drs usually come round to tell us our lung function is shit and then it's all fun and games for the rest of the day...

All I can say is that it isn't fun it's draining and hard and it gets so lonely at times as we can't leave our rooms and we spend a lot of time alone.

But luckly I go to an amazing hospital with the nicest nurses and dr sand physios I could ask for so it does make it easier.

And of course I have an amazing family who visit me constantly and bring me HOME FOOD PRAISE THE LORD.


And I also have some super fab supportive friends who come to see me and they will never know or understand what they mean to me!


And I think that's about it...done on hospitals for now HOLLAAA!



My favs of the week

Just thought I could let u all know what I've been loving this week so that this blog isn't so intense and dull ;))))) wooooooo!



MIC...it's so fabby and I just wanna live in Chelsea and bitch with them all!!

The song I've been listening to on repeat is Bastille's city high cover of What Would You Do...

And I've had a HUGE obsession over cinnamon this week like I don't even know why so I've been snacking off these all the time...

Wow sorry if that was long I just really want to get this blog going somewhere so I don't give up in it like I give up on every freaking thing!



Peace love Iz x

The one where I started this...

Hi guys!!
I've seen lots of people with CF start up blogs and it's just seems like a hobby I could start to do instead off bumming around pretending to have a life!
I was thinking about doing this every other day or something and talking about similar things like my CF life and then just school and general uninteresting crap!

CF
So this year has been kinda bad for my CF!
I've been in for IV's twice so far both times for two weeks, cos I had stupid ABPA!
I'm on steroids and they are making me super hungry which I'm sure my dietitian will be chuffed about ;)
During hospital I had the most amazing nurses caring for me and it made me feel so special and omg I might cry, lol!
I also have two of the most awesome physios ever!

Transitioning to adult care soon which terrifies me as I'm getting to love my CF team and as I'm spending more time at hospital I feel like paeds is a nicer place to stay :O
But other than that I'm good because I've realised I should make the most in life and live everyday doing what I want as I don't want to waste my life away!

School
GCSE's ahhhhh shit!

Life
It's Easter woooooo! I've been loving the weather so have been making the most of my bike!
I am surrounded by my amazing family and they do so much more than they realise for me! They keep me sane!


Peace love Iz x