What CF means to me

Hi everyone,
Sorry I never kept to my every other day promise but I have been so busy and also lost ideas for this blog but the other day I saw this amazing cf blog http://cystikone.wordpress.com/category/adventure/ and he did a post on what CF really was to him and I really liked some of the things he said so I decided I would do my own version of that.
Credit to him.


What's CF really is...
CF is not wanting to plan your future because you don't know how long it will last,
It's waking up each day to hundreds of pills,
It's nebs and physio,
It's the feeling of giving up everyday because nothing helps anyway,
It's crying yourself to sleep because those you love are suffering from this fricking illness and you can even be there for them,
It's getting chest infections all the time,
It's worrying that going to that sleepover or swimming in that pool might make you ill,
It's getting grief from class mates because 'your never in school' so must be bunking,
It's taking pills every time you eat,
 And it's also pain. Not being able to breath as well as you should.

The other blog also wrote the positives of what CF was to him so here's what they are for me...

CF is being stronger because you have no other choice,
It's having a second family in hospital because you are there so often,
It's making amazing friends who can relate to what you are going through,
It's taking each day as it comes,
It's being strong for your family,
And it's being able to eat fricking tonnes of food ;)

I would like to credit this blog again, I completely took the idea and in no way will I take the credit. I just wanted to add its importance to my blog, so if I took this idea from your blog then I'm sorry but your idea was fab.


Life...
So usual life updates part.
Well I've been on holiday and now I'm in Sussex.

I've had my 16th birthday and now a lot of stuff is changing. For starts I'm going from DLA to PIP which is a huge change and I'm also talking more about transition which is scary.


My cousin bought me 5sos tickets so I will be able to cross something off my bucket list and I'm so exited! She also made me the best mixtape which I will for sure be listening to on repeat when I'm ill or down to make me feel better.

Here are some pictures from my birthday...

I had a lovely day in Brighton and I was so happy.

That's it for today lovelies.

Peace love Iz x

Life updates and the start of summer

Hello lovelies,
Finally my exams are done so I will hopefully be able to get back to writing blog posts every other day.

CF...
So my lung function seems pretty good at the moment and to keep it this way I've started to do more exercise which does cause tightness in my chest but I guess I will have to get over that. Otherwise steriods are being reduced and I'm working very hard to keep it that way!

A huge down side to CF is that we cannot meet others with CF as we will catch super bugs from eachother, I hate this because it means we can only support eachother over the internet and it sucks because these amazing people understand what I'm going through and can relate with me and I would love to be able to support them all in person.



Life...
As it's summer and school has finished lots of exiting things have been happening...
In the past week my amazing and beautiful friends organised me a leaving party (more on that in another blog), I've had a late birthday party for one of my best friends and finally prom.

Prom was such an exiting night, everyone looked so glamourous and it was so emotional to be with my entire year again. The night itself was great fun toward the end when everyone started to let their hair down and enjoy themselves.

Here are some pictures from my prom...

Yesterday I went to see The Fault in Our Stars, it was the first time I've cried at a film and it left me feeling quite empty and sad.
The book and film really made me think about life and living with my CF and just learning to make the most of live while you can and just be selfless.
For anyone who hasn't seen the film I really recommend you do.

Finally today I went rowing down a beautiful river, it was so relaxing and it helped me escape from life for a few hours. I really love being surrounded by wildlife.

So that's it's for now, I hope this was interesting!

Peace love Iz x

Awareness month

Hey my lovelies.
Sorry I've been rubbish this month with keeping this blog up to date...exams have just been very stressful and I haven't had much time to just do nothing.
It's half term now so hopefully I will get a few posts up this week.

So lots of stuff has happened recently...

Firstly I had my CF clinic which I go to every two months...
At clinic they check my lung function, take a cough swab and ask me a ton of question.
My lung function has increased for 50% to around 80% which is really good and my weight is almost back up to what it should be.

So I guess you would think that's a good thing right...
Well to be honest I'm not feeling so great about it because it scares me, every time I get better I just end up going through the process of getting worse and it just tires me. Ergh fck CF.
I know I'm lucky to be well though.
Then I see my friends with CF suffering and it makes me mad because it's not fair.

My clinic letter came home as well and it was the most one sided thing ever. My dr wrote that I had promised the dietitian to increase my food supplements which is the biggest lie ;) none of the things he said in the letter I had agreed to but oh well. Haha.

As it's half term I'm back in Sussex which means I'm back in the contryside, so I've decided to do exercise like I've promised my physio. This week I've been on two walks and could really feel benefits from it which was so great. Annnnd I got some pretty pictures for my Instagram ;p

Last thing cf related is that...
It's CF awareness month, so I waned to raise money for the trust and also be more open about my CF so I can learn not to be embarrassed by it.
And HRH Prince Charles become the patron of the cf trust which hopefully means more awareness will be raised so we can be closer to finding a cure.



My life
Erm really all my life has been over the last few weeks is revision and exams but I have been loving a few things...
TV show Orphan Black.
Youtubers...the Saccone Jolys (been watching them for two years) and recently started watching ChewingSand (Hazel Hayes).
Made in Chelsea (it's on right now and I'm missing it because I'm writing this).
And also bubble baths because they are so relaxing.

Had the best tiramisu ice cream today...

So that's it from me today, now I'm going to watch hollyoaks!

Peace love Iz x

So much

Heya!
Sorry I didn't do a post at the weekend but I literally had no time.
I have so much to talk about in this post so I really hope it's not boring.

Over the weekend I remembered that one of my cousins was doing a 10k charity run sometime this year and I wanted to donate to it.
I went onto her facebook to find out how and I saw she had singed up with virgin money giving...but the thing that made me feel so emotional and cry so much was the fact she is raising money for cystic fibrosis.
I know that lots of my family donate to the cf trust but the fact she is training to do a run and donate for cf just made me feel so proud and just show me that I have an amazing family.

Will post the link on my next post so y'all can donate and support my beautiful cousin.

On Saturday me and one of me stunning best friends went to buy our prom dresses. I now own a pretty dress wooooo. We both got dressed up to show her family and it made me all teary because she looked fab and it was just emosh.

My dress...

My shoes (they don't fit well)...

So finally today I had my scripted drama controlled assessment. As I've been in hospital for lots of this year I didn't have a group to go into so my teacher decided I could do it with her reading in.

Thankfully my school also said that it didn't matter how badly it went and that they don't care what grade I get so that's ok.

It was really funny though as me and my teacher both fucked it up and I also forgot what the name of my character was and had a little panic ;)

So that's it for today guys and remember to look out for my cousins donating page in my next blog so you can donate and help find a cure for cf!

Peace love Iz x

A little break

Hey!
Haha so I know I've only just started this thing but as my exams are coming up and revision is starting to stress me out I've decided that I'm only going to write a post once or twice a week until they are done (sorry)!

So today I handed in my prom form and can't wait to get my dress and actually own something pretty instead of jeans and hoddies.

Thanks to my amazing cousin I now have new fab music to listen to on my iPod which include...
One direction
More 5sos
AM
All time low

Drama at school is slightly stressing me as I have to learn all my lines for Monday and I only know half of them so far...shite.


Mmmm what else has happened...
The dentists canceled on me which is great as I didn't want them to pull my baby tooth out.
My doctors haven't confirmed at date for clinic which made me annoyed but I think it's on my last day of school so I will probably miss leavers assembly.

Yah so that's it for today, will do a better post on Saturday or Sunday. As soon as exams are done I will do this thing every other day again. I promise ;)))

Be swaggy ;) or sweggy!

Peace love Iz x

Day in the life of a CFer

Thought I would let you all know what a normal day is like living with cf and talking meds...

If I have school I will normally wake up at 6 and do my acapella for 20 minutes and then do my neb for 10, I normally have a nap after this for a while as it's so tiring!
Once I'm changed and looking fabulous ;) I will take my many pills.
With breakfast I have to take my enzymes which in my case is creon 10000 and I take 2 of these pills with breakfast.
My other morning tablets at the moment include...
Steroids 10mg
Itraconozol x2
Vitamin k
Calcium
Vitamin a and d x3
Pro cal shot 30ml
Fluclox

Then I only need creon during the day if and when I eat to digest my food.

When I come home from school I have my ensure plus and have my DNase neb.

I then have to wait an hour before I can do my acapella and other neb again (in the evenings I spend longer on the acapella).

Then more fricking creon with dinner.

Finally before bed another pro cal shot, fluclox and 2 more tablets of itraconozol.

That's it peops!! Oh and sometimes the gym as part of physio (adding that to please everyone)!

Life
Had a fabby day with my friends today who painted my nails and helped put a smile on my face!

Having to start waking up at 6 again is going to sucks.

Orphan black has started again which makes me happy as it's my favourite show so hopefully it will get my through revision!

Hopefully it was interesting to get an insight into my life...lool!

Peace love Iz x

Easter

HAPPY EASTER EVERYONE!!!

So its easter today and also the end of the holidays!
Ive had an amazing two weeks down at my grandmas, seeing family, going out and just being in the most beautiful place in the world.
Ive been to see phantom of the opera in London which was bloody frickin fab, i went to see captain america, been on lots of walks and went to Brighton to try and get a 5SOS cassette tape for world record day but turns out 300 people had camped outside so we had no chance :(

Currently listening to frozen as I write this...LET IT GOOOOOO!


As easter ends Ive realised that I have only have 11 days of school before exams and this terrifies the shit out of me.
For gcses Im taking:
Biology, Chemistry, Physics, Maths, English, Drama, RS and Geography!
The sooner i can give up science and maths the better because even though I have CF I do not understand biology and genetics ;)

In the next few weeks Ive got clinic so I will do a post on how that goes. Im a bit nervous about it as I dont think Ive gained any weight and dont want to find out my lung function has got worse.(hopefully its at least 75%). buuuuttttt my steroids have been reduced to 10mg so thats great!!!!!!!!!


my cuz made up a quote so here goes...
"God made us with CF not be able to meet eachother because we are so great that if we met up with eachother we would be able to take over the world!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!"
Thanks dude ;))


Just to confirm i actually don't believe in God however i have no negative thought towards people that do.

I hope you all have a swaggytastic easter!!
(I keep using the words good, great, amazing and fab so my cuz told me to use swaggytastic, dw im not a twat).

Peace love Iz x